My husband Daniel passed away last September 2021. We were together for 24 years. He battled leukaemia for five of those.
Daniel was diagnosed with acute myeloid leukaemia (AML) at age
73. The doctors told us he was too old to undergo chemotherapy and bone marrow
transplant. They suggested a new type of medication that would be injected under
the skin in his lower abdomen.
Before agreeing to that, I sought second and third opinions
from other specialists but they came up with the same diagnosis.
We went to the hospital for his weekly injections. His
prognosis was good and his haematologist marvelled at how well his body was
responding to the medication. The doctors warned him, however, to stop travelling
abroad to avoid catching foreign infections.
For four years, I watched my husband handle his disease like
a boss. Nothing slowed him down. He continued working as a freelance writer. He
made short trips around British Columbia and wrote about people, places, and
social issues that were regularly neglected by mainstream media. I joined him
on many of these forays and got to observe how he did interviews and interacted
with people, how he noted tiny details material to his story.
Daniel was organized, disciplined, and focused, both
professionally and personally. He was fearless. He was creative. These
qualities made him one of the most awarded magazine writers in Canada.
To my husband’s credit, he had faith in my writing ability.
He believed that if I worked a little harder and procrastinated less, I could
achieve so much more. He tried very hard to encourage me, but failed miserably.
Unlike him, I mostly rely on inspiration. I was just too lazy.
Daniel spoiled me every day. He planned and cooked all our
meals. He vacuumed and dusted while I sat around and read. He kept me supplied
with my favourite treats. He bought me nice things.
Mostly though, he loved winning arguments. It helped that he
had a strong personality and a loud voice. I compared him to a Zamboni. He
could run me over and flatten me like a pancake, if I allowed him. Whenever I
was right, I stood my ground firmly during a disagreement until he realized
that being taller and louder didn’t ensure victory all the time.
Our loud discussions tapered about 11 years ago, after one
of my visits to the Philippines. During that trip, my fourth big brother was
stabbed and killed by a drug addict. He was my favourite big brother and my best
friend. There were so many things I still wanted to do to help make his life
better, but I missed my chance.
In my work as a writer, community volunteer and advocate for
foreign domestics in Canada, I have seen and written about suicide, separations
and failure. I’ve listened to grieving family members reminding others to do
their best for loved ones before it got too late. Somehow, those words never touched
me until I lost my big brother, until I felt like I was drowning under
relentless waves of guilt and regret because I failed my big brother.
That event changed my attitude towards relationships. I promised
myself that from that day on, I would try to live a life without guilt or regret.
To be kind to everybody, to love my people the best way I can, every day, without
becoming a push-over. To pick my battles. To express my side during arguments
without enmity. To listen without judgement. To forgive myself when I fail.
Two years ago on March 2020, Covid-19 was declared a
pandemic. Canada went into lockdown. People lost their jobs. Businesses closed.
I happily stayed at home with Daniel. He was a sociable person who thrived on
company. I prayed very hard that I would stay healthy and not leave my husband
behind. I didn’t want him to end up sick and alone.
Six months ago during a writing trip, Daniel contracted
pneumonia, which in turn worsened his leukaemia. He ended up in the hospital
twice. I stayed there with him 24 hours a day and read the news to him. I fed
him his favourite ice cream. I sang to him. He thanked me repeatedly for
looking after him so well. When he decided to die at home, we hired a nurse to help
me out. I sat beside him most of the time and held his hand until it was time
for him to go.
Today I feel so very bereft. I miss Daniel so much, but I
have no regrets. I am guilt-free.
(Previously published on the Mill Woods Mosaic, January 15th, 2022)